Privacy & use of cookies

The purpose of this notice   

This notice is written in line with the General Data Protection Regulation (GDPR). It details how the University of Leeds, in its role as Data Controller (for the purposes of data protection legislation), will collect and process your personal data when you access the LIBERATE website.

It is important that you read this notice together with the privacy policy of the QTool website (where users are directed to complete symptom monitoring questionnaires) so that you are fully aware of how and why we are using your data.

Changes to this notice

We keep the information provided here under review. It may be updated from time to time. If we make any substantial updates, we will draw these to your attention.

We will not use your personal data for anything other than the purpose for which it was originally collected, unless we have obtained your consent to that additional use.

Who are we?

The LIBERATE project is led by a University of Leeds PhD student (Kathleen Kane) and supervised by four senior University of Leeds researchers (Dr Fiona Kennedy, Dr Kate Absolom, Dr Clare Harley and Professor Galina Velikova), working within the Section of Patient Centred Outcomes Research at the Leeds Institute of Medical Research at St James’s. This research is funded by Breast Cancer Now.

The LIBERATE website has been created using WordPress, a tool for making and managing web content. Our website is hosted by the web hosting company SiteGround. This essentially means that they manage some of the technical ‘behind the scenes’ aspects such as website security and performance, allowing us to focus on content and design. Our website is stored (‘hosted’) on the SiteGround server, allowing it to be viewed by you as webpages on the internet.

What personal data do we collect and why?

By default, WordPress does not collect any personal data from website users, though features added to aid the design and function of the website (plug-ins) may do.

In the case of LIBERATE, we do not collect personally identifiable data (i.e. data from which you can be identified) on our website. However, as with most other websites, we automatically collect certain information when you access our pages. This is for the purpose of informing our ongoing research, allowing us to get a sense of how frequently the website is used, which pages you find useful and which are not so useful or may require improvement.

This information includes:

  • Which website you have come from before arriving at LIBERATE.
  • The type of operating system, web browser and device you are using.
  • Time of visit, pages visited and how long you spend on each page.
  • Network location and IP address.

This information is collected in an anonymous form (meaning you cannot be identified) using the third-party web analytics service, Google Analytics. This means that Google Analytics acts as a Data Processor.

Whilst the LIBERATE website itself does not store your IP address when you visit, Google Analytics collects this as part of its analytics service so that it can report on location (i.e. where in the world our website is being accessed from). Your IP address is anonymised, however, by removing several of the characters so that you cannot be identified. It is not included in the analytics reports provided to us by Google Analytics.

Google Analytics Terms of Service prohibits the collection of personally identifiable information such as name or email address.

For further information, please see Google Analytics Terms of Service, available at the link below.

https://marketingplatform.google.com/about/analytics/terms/us/

When it comes to reporting your symptoms and side effects, you will be re-directed to the QTool website. Please also see the QTool privacy policy.

How long is data kept for?

Google Analytics retains this anonymised data for 14 months. It will be compiled in reports and stored on the SiteGround server for the duration of this research study. It will only be used for its intended research purposes (as detailed within the LIBERATE study information) and will not be shared with any other third parties.

SiteGround take a number of measures to ensure that they are GDPR compliant in the data which they process on our behalf. This is detailed within their Data Processing Agreement (DPA), further details of which can be found at the link below.

https://www.siteground.com/blog/siteground-is-gdpr-compliant/

Content from other websites

Please note that when you follow links to information and services provided on other websites, their own privacy policy and cookies apply. They may collect additional data or track your interaction with their website. We advise you to read their privacy page if you have any queries or concerns.

Use of cookies

Cookies are small text files which are placed on your computer (or the device you use) by websites you visit. They are used by websites to monitor and improve performance and to provide information to the owners of the website.

We use minimal cookies on the LIBERATE website. Table one below lists the cookies we do use, all of which are to inform our research by allowing us to monitor (anonymously) how users interact with our website and how well our website is performing.

CookiesOverall purposeFurther information
LIBERATE uses three cookies installed by Google Analytics (a service provided by google, allowing us to monitor the use and performance of the LIBERATE website).   These are: _ga, _gid, _gat  These cookies collect information in an anonymous form about how users interact with our website e.g. how many users visit the website (by assigning each user a randomly generated number as an identifier), which pages they view and for how long. We will use this information to report on website use, to inform our research and to further develop the LIBERATE website. You cannot be identified from the information collected.Google privacy policy  
Google Analytics terms of service   Google Analytics opt out browser
Table one: Overview of cookies used by LIBERATE
CookiePurposeTypeDuration
_gaThis cookie is installed by Google Universal Analytics. It is used to keep track of and report on how the website it used. The cookie stores information anonymously and assigns a randomly generated number to identify unique users.Analytics (how the website is used).2 years
_gidThis cookie is installed by Google Analytics. It is used to store anonymous information on how visitors are using the website (e.g. number of visitors, pages visited, where they have come from) and helps in compiling a report of this information.Analytics (how the website is used).1 day
_gatThis cookie is installed by Google Universal Analytics. It is used to throttle (i.e. limit or slow down) the request rate to limit the collection of data on high traffic websites.Performance (how well the website is working).1 – 10minutes
Table two: Breakdown of cookies purpose and duration

Queries and complaints

If you have any queries or concerns relating to this privacy notice or the way your data is being processed through this website then please contact the University’s Data Protection Officer, Alice Temple on a.c.temple@leeds.ac.uk or by post to University of Leeds, 11.72 EC Stoner Building, Leeds LS2 9JT, UK. The University’s main telephone number is +44 (0) 113 2431751.

The UK’s regulator for the DPA and GDPR is the Information Commissioner’s Office (ICO). The University is registered as a Data Controller with the ICO

Should you be dissatisfied with our handling of your concerns you have the right to complain to a supervisory authority. In the UK, this is the Information Commissioner’s Office and details can be found at https://ico.org.uk.

Page last updated: May 2020